We have 1 week down

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Tux1
Posts: 103
Joined: Wed Apr 11, 2007 9:39 am
Location: Orlando, FL
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We have 1 week down

Post by Tux1 » Wed Apr 18, 2007 3:53 pm

Tux has been very energetic to the point of annoying this week which just makes us very happy. Our record is 14 days with out a seizure but 1 week is still a nice hurdle to achive on our way to a new record for him.
will keep yall posted and thank you again for the prayers and warm thoughts.


Joe
Tux 4 year old Border Collie (epi)
Alqa 4 y/o sister Border Collie
1st Seizure 02/18/2007
RIP Tux 01.01.10

Dylans Dad
Posts: 490
Joined: Sun Oct 08, 2006 5:12 am
Location: SE Iowa
Contact:

Post by Dylans Dad » Wed Apr 18, 2007 6:33 pm

yay tux!!!! take it one step at a time ...1 week ,2weeks and on and on.
don`t ya just love that border collie stare?
Wags & Slurps
Debby & Dylan
6 yr old Border collie
1st aug 7 2006
last 7-18-08
375 MG kbr twice a day
1 47.5 pb twice a day

lovemypups
Posts: 438
Joined: Mon Aug 22, 2005 9:08 pm
Location: KY

Post by lovemypups » Wed Apr 18, 2007 7:42 pm

Congratulations Tux. Little baby steps are what it is all about! All appendages crossed that Tux will go for a very, very long time seizure free.
Debbie
Angel Casey
05/03/04-10/24/07
and his non epi sister Callie

Mandypop
Posts: 238
Joined: Wed Oct 25, 2006 9:29 am
Location: London, UK

Post by Mandypop » Thu Apr 19, 2007 2:11 am

Fantastic news, long may it continue!
Poppy - 9 year old whippet/greyhound (20 kg)

First seizure- 17th Oct 2006
Last seizure - 17th Nov 2009

90mg Pb twice daily
320mg KBr daily

Tux1
Posts: 103
Joined: Wed Apr 11, 2007 9:39 am
Location: Orlando, FL
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Post by Tux1 » Fri Apr 20, 2007 7:18 am

Unfortunately we have ended our streak at 9 days. He has had one a 9 am this morning 9 days after starting kbr. I know it takes a month to get in his system and all but we were really optimistic that we were going to make it past the 2 week mark.

However the nice thing is we are already pushing a half hour since the seizure and we havent had a cluster. Normally we would already be coming out of #3 for the morning. So that is promising.

Thanks everyone
Tux 4 year old Border Collie (epi)
Alqa 4 y/o sister Border Collie
1st Seizure 02/18/2007
RIP Tux 01.01.10

Mandypop
Posts: 238
Joined: Wed Oct 25, 2006 9:29 am
Location: London, UK

Post by Mandypop » Fri Apr 20, 2007 7:32 am

What a shame. It does sound promising that he hasn't clustered - Lets hope the kbr will do the trick.

Good luck
Mandy
Poppy - 9 year old whippet/greyhound (20 kg)

First seizure- 17th Oct 2006
Last seizure - 17th Nov 2009

90mg Pb twice daily
320mg KBr daily

MK's mom
Posts: 1708
Joined: Wed Mar 01, 2006 9:48 am
Location: Michigan

Post by MK's mom » Fri Apr 20, 2007 7:42 am

Joe,

We all know how frustrating this is, but please do not lose heart. I cannot recall, is Tux on Pb, too? It's a very good thing if Tux didn't cluster. My neurologist told me that they aim to minimize seizures, they rarely go away forever, so if Tux's seizures become less and less, that is pretty much all you can hope for.
Nathan
3.5 yo Irish Setter boy
First seizure 7/26/2013
Last seizure 3/24/2014
__________________________________
MK
5 yo Irish Setter boy
First seizure 1/25/06
Last seizure 9/4/2009

Aug 17, 2004- Sept. 22, 2009
May the shamrocks fall softly sweetpea

Tux1
Posts: 103
Joined: Wed Apr 11, 2007 9:39 am
Location: Orlando, FL
Contact:

Post by Tux1 » Fri Apr 20, 2007 9:20 am

2 hours now and no cluster. this is a first for us. We are both very excited that we may be seeing a light at the end of this tunnel now. Typically for us after 2 hours we would be looking at 6 or 7 seizures already. but today we have 1 and the way he is acting today you would never have thought he had one. When he came out of it this morning he wasnt bumping in to walls or falling down like he normaly does. He was hungry like usuall but a little ice cream fixed that. We are very happy though as he would normally be at the vet due to the clusters so this is great so far.

He has been on pb for a couple months now and just started the kbr.
One thing we did notice this morning was his sister may have given us a warning about the siezure. She doesnt ever howl and about 2 hours before the seizure she howled. Now we would love if this was her saying my brother is about to have a siezure or if she just howled cause she decided that 7am was a good time to howl. We would love if she could warn us though when he is going to have one. It could mean us being able to give him valuim to maybe stop him from ever having it or any other method that may stop him. We have tried the ice packs and we use them every time but they have never stopped the attack from happening.

well the bright side is we are already 2 and a half hours siezure free. :)
and we will continue to try and make it past the 2 week mark.
Thank you agian everyone
Tux 4 year old Border Collie (epi)
Alqa 4 y/o sister Border Collie
1st Seizure 02/18/2007
RIP Tux 01.01.10

Mandypop
Posts: 238
Joined: Wed Oct 25, 2006 9:29 am
Location: London, UK

Post by Mandypop » Fri Apr 20, 2007 9:29 am

Hi Joe

Hope this continues, and this how interesting that your other dog may be giving you prior warning to Tux's seizures.

Hope you have a lovely quiet weekend.
Mandy
Poppy - 9 year old whippet/greyhound (20 kg)

First seizure- 17th Oct 2006
Last seizure - 17th Nov 2009

90mg Pb twice daily
320mg KBr daily

MK's mom
Posts: 1708
Joined: Wed Mar 01, 2006 9:48 am
Location: Michigan

Post by MK's mom » Fri Apr 20, 2007 10:57 am

Joe,

It could very well be that Tux's sister was warning of an impending episode. I know an epileptic woman whose Irish Setter warns her when she's going to have a seizure!!! I don't know how he lets her know, but he does. Dogs are so in tune with things, often moreso than ourselves.

Some people give an extra dose of Pb if they think the dog is going to seize. Ice packs lessen the seizure or post ictal phase, they cannot prevent the seizure entirely.
Nathan
3.5 yo Irish Setter boy
First seizure 7/26/2013
Last seizure 3/24/2014
__________________________________
MK
5 yo Irish Setter boy
First seizure 1/25/06
Last seizure 9/4/2009

Aug 17, 2004- Sept. 22, 2009
May the shamrocks fall softly sweetpea

Tux1
Posts: 103
Joined: Wed Apr 11, 2007 9:39 am
Location: Orlando, FL
Contact:

Post by Tux1 » Fri Apr 20, 2007 11:13 am

Well more bad news we just had another episode. Very lite one though compared to this morning which I think was because of the Valium. I would much rather have him have the kind he just had if he continues to have them. Also incase I have never told yall his siezures only last about 30 seconds from time of the actuall shaking to the time he gets on his feet. and then the post phase typically has only lasted a minute or so Unless he goes in to his clusters. The longest he has ever siezed is about a minute and that was his first seizure ever. I think that one was the worst due to us not having any idea what had just happend and we were screaming and thinking he had just died. We will keep you updated as this horrible day continues.

Joe
Tux 4 year old Border Collie (epi)
Alqa 4 y/o sister Border Collie
1st Seizure 02/18/2007
RIP Tux 01.01.10

MK's mom
Posts: 1708
Joined: Wed Mar 01, 2006 9:48 am
Location: Michigan

Post by MK's mom » Fri Apr 20, 2007 11:32 am

Joe,

Ask your vet about getting some chlorazapate. it's stronger than the valium they give us and it will sedate Tux in the hopes that it can break the cluster.
Nathan
3.5 yo Irish Setter boy
First seizure 7/26/2013
Last seizure 3/24/2014
__________________________________
MK
5 yo Irish Setter boy
First seizure 1/25/06
Last seizure 9/4/2009

Aug 17, 2004- Sept. 22, 2009
May the shamrocks fall softly sweetpea

SleepingDog
Posts: 32
Joined: Tue Mar 27, 2007 11:04 am

Post by SleepingDog » Fri Apr 20, 2007 11:47 am

His sister could have been warning you. Alby's sister Julie warned us after the first time he had a seizure. About 30 minutes before he would go into one she would go over and sniff his head and then come and put her head on our lap. She would keep looking at him then back at us. If we didnt pay attention to her she would pull on our pant leg or shirt sleeve! You could probably train his sister to do it if you wanted to. They are not dumb they know what is going on. There are service dogs that alert people that they are about to have a seizure so it shouldnt be much different. Maybe you would have time to stop it before it happened. Good Luck!!
~SleepingDog~

Proud Mother of:
Alby-10 yr. old Black Lab. (Epi)
Pandora-2 yr. old Chow/GSD (non-Epi)
Julie- 3/28/96-1/6/07 Collie/GSD (non-Epi)

Tux1
Posts: 103
Joined: Wed Apr 11, 2007 9:39 am
Location: Orlando, FL
Contact:

Post by Tux1 » Fri Apr 20, 2007 1:29 pm

Thanks MK
I will ask for that
we are always willing to try any thing. And I just said to my wife for him having 2 seizures today and 2 doses of valium it is amazing how much energy he still has today. I would think he would be wanting to just sleep the rest of the day. But no he is up and wanting to play with his rope his tennis balls and his frisbee all at the same time. Gotta love the guys spunk.
Tux 4 year old Border Collie (epi)
Alqa 4 y/o sister Border Collie
1st Seizure 02/18/2007
RIP Tux 01.01.10

Dylans Dad
Posts: 490
Joined: Sun Oct 08, 2006 5:12 am
Location: SE Iowa
Contact:

Post by Dylans Dad » Fri Apr 20, 2007 3:18 pm

of all Dyans episodes,the only time he every had just one was on oct 13. the last day he has had one(knocking on wood so hard my knuckles are bleeding)it does sound like it has helped with the numbers Tux has.maybe it will phase them way down.we can`t every really think that are babies will never seize again, but if we can cut them down to 1/3 then I`m thinking we have done good. hugs to you all.
lets hope for 18 days at least
Wags & Slurps
Debby & Dylan
6 yr old Border collie
1st aug 7 2006
last 7-18-08
375 MG kbr twice a day
1 47.5 pb twice a day

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